Tag Archives: AIDS

medication adherence: our technique

I had to take an anti-migraine pill every night for about 15 years. It is surprisingly hard to do that reliably and consistently. In the first week, you remember doing it, because it is a new thing. By the second week, the pills fall into the general background rhythm of your life. After a couple of months you don’t even notice you are taking them any more. That’s when adherence became a problem for me. Did I take the pill tonight, or do I just think I took the pill? Eventually I learned how to take my prescription reliably and with help from our friends John and Stephen, I was able to use what I had learned to help Michael with his meds. Here is a description of our technique.

pill boxes and alarms

Our technique has two components: pill boxes and alarms.

  • Get two pill boxes, ideally the type with seven removable strips (one for each day) divided into four separate compartments (to allow for taking meds at different times of the day). On Sunday morning, fill the empty pill box with a week’s worth of meds. By using two pill boxes, you make sure that you always have at least one full week’s meds already in a pill box.
  • Put an alarm on your mobile phone for the time (or times) when you should be taking your meds. When the alarm goes off, stop whatever you are doing and take the meds.

That’s all there is to it.

Because the pill box holds each day’s meds individually, there will never have any confusion about whether or not you have taken your meds. If Tuesday evening’s compartment is empty, then you have taken Tuesday evening’s meds. If it isn’t empty, then you haven’t. It also makes life easier if you have additional short-term meds to take – simply add them to the appropriate compartment in the pill box.

By always taking the meds at the same time, and having an alarm to remind you, it is much less likely that you will forget.

helping your partner

If there is a job to be done and one of us finds it difficult and the other finds it easy, then the one who finds it easy does it. This is the essence of partnership. Like many people living with HIV, Michael sometimes finds his meds overwhelming. As his husband, I do what I can to help him. I look after his meds for him. When he brings a new batch home from hospital, I put it into the HIV medicine cupboard. On  a Sunday morning, I fill the pill boxes for him. There is an alarm on my phone for 10:30 each evening, and when it goes off, I stop what I’m doing, and I get Michael a glass of Coke and give him his meds. That way Michael doesn’t have to worry about his meds, except when he has to take them. That is a large burden that I’ve lifted from Michael’s shoulders, and it is very little work for me.

That is what works for us. In other relationships it may be the negative partner who is overwhelmed by the medication, or you might be in a relationship where you are both OK about the meds. Whatever your situation, if you are finding adherence difficult, I hope you find our technique useful.

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results and more tests…

It’s only two weeks since I was up at the HIV clinic at the Royal Victoria Hospital in Belfast. That appointment was an emergency one due to the somewhat awful cough and chest infection from which I was suffering at the time. The news back then was that the results from May’s blood tests were very encouraging:

CD4 = 190 (9%)
VL = undetectable

Well, today I had the results of the tests on the blood taken two weeks ago. Whilst the CD4 count is down numerically to 140, the percentage is the same at 9%. This was not entirely unexpected as my body was fighting the chest infection at the time. Viral Load was once again undetectable.

My consultant, Dr Carol Emerson, reckoned that this was all down to a certain Andrew. (more…)

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Christian bookshop lumps AIDS with Death and Suicide

AIDS / DEATH / SUICIDE

AIDS / DEATH / SUICIDE

Back in March I was pleased that the Faith Mission Shop in Queen Street, Belfast had removed Chick Tracts from sale given the homophobic views expressed in them. Yesterday I was disappointed with Faith Mission.

After my blog post in March I had gone in to see this for myself. Whilst there I asked if there were any books on living with HIV – as there were many on living with cancer. I was pointed to a small section marked ‘ethics’. At this point I saw three words next to each other on a shelf which was immediately below the shelf marked ‘Homosexuality‘. (more…)

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too much misinformation out there – education on HIV is much needed

The Red ribbon is a symbol for solidarity with...

Image via Wikipedia

NAT (National AIDS Trust) today launches its fourth survey ’HIV: Public Knowledge and Attitudes 2010’, conducted by Ipsos MORI amongst adults aged 16+ in Great Britain (referred to henceforth as ‘people’ or ‘the public’). The report reveals a worrying decline in knowledge and understanding of HIV over the past ten years.

One in five adults do not realise HIV is transmitted through sex without a condom between a man and a woman

  • Only three in ten adults (30%) can correctly identify, from a list of possible routes, all of the ways HIV is and is not transmitted
  • An increasing proportion of adults incorrectly believe HIV can be transmitted by impossible routes such as kissing and spitting
  • Nearly a fifth of adults (19%) believe if a family member was HIV positive it would damage their relationship with them
  • More than two thirds of British adults (68%) agree more needs to be done to tackle prejudice against people living with HIV in the UK

Over in the US, ABC News has carried out an experiment in a diner. Some people think that discrimination on the basis of living with HIV doesn’t happen – but watch here and see.

For those of us who are very public about living with HIV we can face similar discrimination on a near daily basis. For those who are not public about their diagnosis they can still face the discrimination but it is probably harder for them to combat it. In a recent survey in Belfast, fewer than 5% of those living with HIV felt that they could share that wider than health care professionals and support workers. Obviously, I am one of those that is able. I am a lucky one.

We must tell the world that HIV is not contagious in normal everyday life. That’s one of the reasons that I am so public about living with HIV. It helps to break down the stigma.

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my name is Andrew

Featured on Liberal Democrat Voice

The Red ribbon is a symbol for solidarity with HIV and AIDS

I wear a red ribbon on my coat daily. Image via Wikipedia

My name is Andrew, and I am living with HIV.

You might think that I am HIV positive – I am not. I am living with HIV because my boyfriend*, Michael, the man I love,  is HIV positive. I am living with HIV because HIV has a direct impact on my life.

I am also, to some extent, living with PVL-MRSA, because Michael has that too. Today Michael had an appointment at the Royal Victoria Hospital, Belfast, and his doctor took the opportunity to screen me for MRSA, because there was a chance that I was an asymptomatic carrier. It is important to make sure I don’t have MRSA because I could act as a source of re-infection for Michael. I have been thoroughly swabbed§ and given special anti-bacterial shower gel.†

Day-to-day, the MRSA has a bigger impact on my life at the moment. Even though the impact isn’t too bad (it’s mainly about being really precise about cleaning myself and the house) it is a constant reminder that Michael is unwell. When it comes to HIV, the biggest impact on my life is from Michael’s medication. For many years I was on anti-depressants and anti-migraine drugs. From that experience I know how hard it can be, emotionally, to have to take pills day in, day out. I also have many years’ experience of making sure I stick to my schedule and making sure meds don’t run out. I’m using that experience to help Michael. And don’t tell him, but secretly making sure the meds are in order appeals to the borderline OCD neat-freak in me.

If you are HIV positive, you experience prejudice. There are people who don’t touch you, or won’t have anything to do with you. Friends you thought you could always depend on become distant. In recent weeks, I’ve started to experience some of that prejudice too, from some very unexpected quarters. Yes, it’s hard. But you know, Michael is worth it.

People might think (but not ask) why did I get into a relationship with Michael. The answer is simple: it’s because I love him. We started as colleagues on the Belfast Pride committee. From there we became friends, and the friendship became romantic very quickly and very easily. Being HIV positive doesn’t mean you can’t have friends, and it doesn’t mean you can’t have a boyfriend. I wouldn’t have rejected Michael as a friend because of HIV, and what we have is far more important than friendship. Yes, there are some things we have to take into consideration, but then again every relationship requires adaptation and compromise.

My name is Andrew and I am living with HIV; my name is Andrew and I love Michael.

Footnotes
* Well, that’s not entirely accurate, but meh…
§ If you are ever getting the inside of your nose swabbed, no matter how much it tickles, do not laugh. You can laugh when other body parts are getting swabbed though.
† This Christmas the only toiletries I got came from the NHS.
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