Tag Archives: health

Is the Executive so tight that they cannot find £5000?

Logo of the Northern Ireland Executive

Can the Executive not find £5000? Image via Wikipedia

I was interested to notice that cancer patients in Northern Ireland are among those benefiting from a payment from the Northern Ireland Executive of a one-off winter fuel payment. Apparently this is because their immune systems are somewhat suppressed and they need to stay warm.

£5000 is not much in the overall budget of the Northern Ireland Executive. At least you would not think that it is. Yet this relatively small amount of money is all that it would take to extend the payment of the winter fuel payment to one group of people who could really benefit from it.

This group of people is made up of people who, like the cancer patients who are receiving the winter fuel payment, have suppressed or compromised immune systems. Yet, the cause of their immunosuppression is not one that seems very popular. We’re only just over a week from the Health Minister championing their cause, yet the Executive has ignored them in this payment.

I am sure that there are many fewer people living with HIV and receiving care in Northern Ireland than those receiving cancer treatment. According to latest statistics, it is suggested that the number is just under 500. Surely the Northern Ireland Executive could find £5,000 to pay the one-off winter fuel payment to these people as well.

All this takes is a bit of joined up thinking from those on the hill in Stormont. Is £5,000 really too much to ask?

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medication adherence: our technique

I had to take an anti-migraine pill every night for about 15 years. It is surprisingly hard to do that reliably and consistently. In the first week, you remember doing it, because it is a new thing. By the second week, the pills fall into the general background rhythm of your life. After a couple of months you don’t even notice you are taking them any more. That’s when adherence became a problem for me. Did I take the pill tonight, or do I just think I took the pill? Eventually I learned how to take my prescription reliably and with help from our friends John and Stephen, I was able to use what I had learned to help Michael with his meds. Here is a description of our technique.

pill boxes and alarms

Our technique has two components: pill boxes and alarms.

  • Get two pill boxes, ideally the type with seven removable strips (one for each day) divided into four separate compartments (to allow for taking meds at different times of the day). On Sunday morning, fill the empty pill box with a week’s worth of meds. By using two pill boxes, you make sure that you always have at least one full week’s meds already in a pill box.
  • Put an alarm on your mobile phone for the time (or times) when you should be taking your meds. When the alarm goes off, stop whatever you are doing and take the meds.

That’s all there is to it.

Because the pill box holds each day’s meds individually, there will never have any confusion about whether or not you have taken your meds. If Tuesday evening’s compartment is empty, then you have taken Tuesday evening’s meds. If it isn’t empty, then you haven’t. It also makes life easier if you have additional short-term meds to take – simply add them to the appropriate compartment in the pill box.

By always taking the meds at the same time, and having an alarm to remind you, it is much less likely that you will forget.

helping your partner

If there is a job to be done and one of us finds it difficult and the other finds it easy, then the one who finds it easy does it. This is the essence of partnership. Like many people living with HIV, Michael sometimes finds his meds overwhelming. As his husband, I do what I can to help him. I look after his meds for him. When he brings a new batch home from hospital, I put it into the HIV medicine cupboard. On  a Sunday morning, I fill the pill boxes for him. There is an alarm on my phone for 10:30 each evening, and when it goes off, I stop what I’m doing, and I get Michael a glass of Coke and give him his meds. That way Michael doesn’t have to worry about his meds, except when he has to take them. That is a large burden that I’ve lifted from Michael’s shoulders, and it is very little work for me.

That is what works for us. In other relationships it may be the negative partner who is overwhelmed by the medication, or you might be in a relationship where you are both OK about the meds. Whatever your situation, if you are finding adherence difficult, I hope you find our technique useful.

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results and more tests…

It’s only two weeks since I was up at the HIV clinic at the Royal Victoria Hospital in Belfast. That appointment was an emergency one due to the somewhat awful cough and chest infection from which I was suffering at the time. The news back then was that the results from May’s blood tests were very encouraging:

CD4 = 190 (9%)
VL = undetectable

Well, today I had the results of the tests on the blood taken two weeks ago. Whilst the CD4 count is down numerically to 140, the percentage is the same at 9%. This was not entirely unexpected as my body was fighting the chest infection at the time. Viral Load was once again undetectable.

My consultant, Dr Carol Emerson, reckoned that this was all down to a certain Andrew. (more…)

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and we’re down to 12 days – oops

Well it was bound to happen at some point. I’ve been very good at taking my meds, but with the last appointment at the clinic on the day before my civil partnership, I didn’t really have time to go and get the prescription for the next few months then. And so we’re down to 12 days’ worth of meds left.

So up to the Royal Victoria Hospital I must go tomorrow to get the prescription. I’ll call in on the clinic to check the date of my next appointment as that seems to have gone astray as well in my mind.

 

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Aside

TMA 00 has returned… more forms to fill in

TMA00

I’ve just got back the assessment of TMA00 from my tutor.

He says

Interesting approach, Michael, I’m going to enjoy your submissions.

I’m going to enjoy writing them I think too.

DLA

It’s all about TLAs isn’t it… This one instead of the more usual OU TLA of TMA is, of course, DLA, which I have just read about in Chapter 2 of Personal Finance and of which I have some knowledge as it stands for Disability Living Allowance.

I’ve to fill in another application form to reapply for DLA. It really doesn’t seem like two years have passed since I was awarded DLA following my diagnosis as someone living with HIV with particular needs with regard to personal care.

Yesterday I got out a copy of the original form I filled in, and am going to be starting work on this one this evening.

TMA 01

I do of course have TMA 01 for DB123 to get done as well. But since that is only in the calendar for next week, I think I have a bit of time still to complete it. That being said, I do like to get ahead of myself when I can.

originally posted on my OU blog (available to Open University users only)